Muscular Dystrophy (MD) is a genetic disorder which results in the progressive weakening and wasting of muscles. A highly debilitating condition with no current cure, children diagnosed with MD require specialist treatment and management to ensure they remain mobile for as long as possible.
The Neuromuscular Clinic at the RCH is at the forefront of international neuromuscular research and care, thanks to the support of Muscular Dystrophy Australia (MDA), who have funded the service since its establishment in 2008.
MDA have just announced an incredible pledge of $1.8 million over 10 years to continue their support of the Neuromuscular Clinic at the hospital. The pledge was one of the final acts of Boris M Struk as the Executive Director of MDA, a position he is stepping down from after 33 years. Boris’s steadfast commitment to raising awareness and funds for MD has improved the lives of thousands of families who without the MDA, would have nowhere to turn in their times of need.
“Having experienced the catastrophic diagnosis of my youngest son Ryan with Duchenne Muscular Dystrophy, I became only too aware for the need of a multidisciplinary support structure to be in place to provide essential support,” said Boris.
The service is vital for children with MD and their families, as one of two clinics of its kind in the country. MDA’s ongoing commitment ensures that the MD community continues to receive the best possible support into the future.