Main funding purpose: for research into cystic fibrosis (CF).

The story so far

The Cystic Fibrosis (CF) Research Trust was formed in 1999 by a group of parents, in conjunction with Associate Professor Philip Robinson, the Director of Respiratory and Sleep Medicine. The group aims to fund research into CF, a life-threatening genetic disorder that severely affects lung function and digestion.

One of the Trust’s major fundraising activities has been an Annual Gala Ball. The first ball was held at the Regent Theatre but over time the event had to be moved to bigger venues to accommodate all those who wanted to attend. Some spectacular raffle prizes have been offered over the years, including a Tiger Woods signed photo; a genuine Elvis Presley signed photo; a framed jumper signed by the Australian Rugby Union Team and a bottle of wine signed by President Bill Clinton and dated September 11, 2001.

Other major fundraising initiatives have included the sale of CF Light Red – a light style red wine developed and especially labelled for the Auxiliary by Mt Avoca Winery. The range was expanded to include a white wine. They also sold CF roses and held an annual fun run around the Maribyrnong River. As well as direct donations, the Trust receives support from corporate donors and organisations.

Over the years the Trust has raised in excess of $2.7 million, which has gone towards sponsoring overseas doctors to further their research in CF.

Office bearers

President: Peter Hader
Secretary: Silvia Pozzuto and Pamela Dunn
Treasurer: Leo Vargiu

Contact

Silvia Pozzuto

Phone
0414 684 059

Email
[email protected]