The Royal Children’s Cystic Fibrosis Research Trust

Raising funds for research into cystic fibrosis (CF).

Area: Based at the RCH

The story so far

The Royal Children’s CF Research Trust was formed in 2000 by a group of parents in conjunction with Associate Professor Philip Robinson, Director of the RCH’s CF Unit. The group seeks to fund research into CF, a life-threatening genetic disorder that severely affects lung function and digestion.

Research projects are based at the RCH, one of the world’s leading paediatric teaching hospitals, which has more than 300 patients under its care.

As membership of the Trust is entirely voluntary, every dollar raised goes directly to research. Since 2000, the Trust has paid the salaries of 11 doctors to undertake full-time research into aspects of CF. It has also funded the trips of three internationally recognised CF expects who have shared their knowledge and best practice with RCH medical professionals.

What we are working on

In 2008 the CF Research Unit at the RCH, in conjunction with the CF Unit at the Princess Margaret Hospital in Perth, joined together to form the AREST CF Group. The AREST (Australian Respiratory Early Surveillance Team) CF Group will spend the next 3 to 5 years conducting innovative and wide-ranging research projects into the assessment and management of early lung disease in infants with CF.

Office bearers

President: Peter Hader
Secretary: Silvia Pozzuto
Treasurer: Leo Vargiu


Silvia Pozzuto

0414 684 059

[email protected]