Article from 2020/2021 Impact of Giving Annual Report
The RCH cares for thousands of sick children and young people each year, including those diagnosed with neurological movement disorders. These life-limiting and progressive disorders cause muscle weakness, uncontrollable violent movements, twisting postures or spasms that profoundly impact on their quality of life. Thanks to the generosity of the Live Life Foundation, children and young people with these disorders can receive the most advanced and specialised care through the RCH Neurology Department.
With a passion for philanthropy and community, successful businessman Perry Sambor established The Live Life Foundation in 2013 to support the care of children with disabilities.
In 2014, Perry was introduced to Professor Andrew Kornberg, a leading clinician in the RCH Neurology Department. The meeting was the beginning of a great friendship and incredible ongoing support by the Live Life Foundation. Since that time, the Live Life Foundation has raised funds exclusively for Neurology in support of projects that assist children diagnosed with disorders of the brain, nerves and muscles.
“Through the Live Life Foundation, we aim to positively impact the future of children’s health and give these special patients a chance to live their lives to the fullest. We are proud to support the RCH Neurology Department and its incredible staff,” said Perry.
The Live Life Foundation holds a golf day to raise funds, with Perry using his extensive business networks to advocate for the cause. To date, the Live Life Foundation has contributed over $300,000 towards several projects. These include sponsoring a bed on Cockatoo, which benefits children requiring ongoing surgical or neurological care, as well as providing funding for the Stroke, Epilepsy and Complex Movement Disorders Programs and the Neuromuscular Clinic which streamlines appointments and care across multiple departments. Significantly, they have also provided funds for Neurology Clinical Research Fellowship position.
“We’re very grateful to the Live Life Foundation for its support of the Neurology Clinical Research Fellowship. With this generous funding, we can guarantee that the next generation of paediatric neurologists at the RCH will have every opportunity to gain world class research experience and clinical exposure while completing their training within the hospital,” said Professor Monique Ryan, Director of Neurology.
Through the Live Life Foundation, Perry and his supporters continue to enhance the expertise of Neurology and make an impact on the lives of children with neurological movement disorders.